Tuesday 11 June 2013

Our Story

On Sunday 3rd Feb, Imogen had gone to my mums for the day. Some time in the afternoon, my mum rang, and asked if Imogen had hurt her ankle at all as she had been limping and it was quite swollen. We hadn't noticed if she'd fallen over or anything to cause it. 
Once mum had dropped her off, we had a look and the ankle was huge! It was also warm to touch. So off we went to our local A&E Dept, where they told me it was probably just a sprain and to come back in 48 hours if the swelling had not gone down.
Cue 48 hours later, by which time Imogen had a swollen wrist as well. We went back up to A&E to see if they could do XRays to see what was going on. Xrays showed no breaks, so we sent back to the A&E dept to wait for the Doctor. We were then told that they thought it was possibly Arthritis and that she'd be transferred to the Children's Ward so see Doctors up there.
A Doctor came in to see us and looked at the wrist and the ankle, she also noticed that since we'd been at the hospital, Imogen's knee was starting to swell. They wanted to keep her in overnight for observation and high doses of Ibuprofen to try and reduce the swelling.
The next day we saw the Consultant who took bloods for numerous tests to try and diagnose Imogen. Once these bloods came back we had a definite diagnosis of JIA (Juvenile Idiopathic Arthritis) They thought to begin with that it was Oligoarticular but as more joints became affected it was switched to Polyarticular.
So that's the beginning of our story!

X

Monday 10 June 2013

How Things Have Changed!

Well since I last posted, things have changed a lot. Imogen is happier and much more comfortable! She still has bad days, but there are less of them at the moment.

She still has active arthritis in her wrist, knee and ankle - however it has improved greatly from where we were.

We go back up to GOSH on the 28th to see the Consultants there, and I think they will probably up Imogen's MTX slightly to see if that can get rid of the active arthritis.

She had a joint injection under general anaesthetic last week! Her wrist, the worst joint, was swollen and sore, so they decided to give a steroid injection under GA to help. It was horrific for us, however she was in and out of theatre within about 20 minutes. We spent less than four hours in the hospital!

So all in all things are certainly better! All I can say, is it's about time! x