http://www.964eagle.co.uk/news/local-news/1180258/video-a-three-year-olds-arthritis-journey/
Our Radio Bit
Friday 17 January 2014
Thursday 16 January 2014
Ooh a quiet few minutes!
Well, Imogen is going to be starting Enbrel in the near future. Hopefully in the next week or so! This drug can take 4-6 weeks to work effectively, but she will be taking it alongside MTX for the moment.
Physio would like to cast her foot again. She was in casts for a week previously, but she then went into flare again so they weren't as effective as hoped. It will only be one leg this time, but for two weeks rather than one!
We did some filming with local radio station 96.4 The Eagle on Monday. That will be going out on their breakfast show tomorrow morning which is quite exciting!!!
We have eye tests at the end of the month. Imogen is thankfully getting better as time goes on with these. Hopefully again we'll get a clear result and then not have another for three months.
After that appointment, I actually have nothing in the diary for the whole of Feb!!! Which is amazing, although it will change and we'll have at least one.
On the 6th Feb, it will be a year to the day that Imogen was diagnosed! Where has that gone? It seems mad. I remember that day as though it was yesterday! We've been through so much this last year, and become a stronger family unit for it. I never thought I'd be doing injections weekly and it seeming the most normal thing! Hospitals seem like our second home, and we know most of the nurses at our local hospital by name!
XX
Physio would like to cast her foot again. She was in casts for a week previously, but she then went into flare again so they weren't as effective as hoped. It will only be one leg this time, but for two weeks rather than one!
We did some filming with local radio station 96.4 The Eagle on Monday. That will be going out on their breakfast show tomorrow morning which is quite exciting!!!
We have eye tests at the end of the month. Imogen is thankfully getting better as time goes on with these. Hopefully again we'll get a clear result and then not have another for three months.
After that appointment, I actually have nothing in the diary for the whole of Feb!!! Which is amazing, although it will change and we'll have at least one.
On the 6th Feb, it will be a year to the day that Imogen was diagnosed! Where has that gone? It seems mad. I remember that day as though it was yesterday! We've been through so much this last year, and become a stronger family unit for it. I never thought I'd be doing injections weekly and it seeming the most normal thing! Hospitals seem like our second home, and we know most of the nurses at our local hospital by name!
XX
Tuesday 14 January 2014
Raising Awareness
So, last year:
- I was a Social Media Champion for Arthritis Research UK
- Imogen and I appeared on Daybreak during National Arthritis Week
- I did a radio interview for BBC Sussex and Surrey for National Arthritis Week too
This year I want to do even more!
So far I have done some filming for local radio station 96.4 Eagle. As soon as it's available I will post a link.
I have also been approached by NRAS to become part of their Parent Panel when they revamp in the summer.
Exciting things are afoot this year already!!!
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