Wednesday 20 February 2013

Official Diagnosis...sort of

Well, finally got some sense out of the consultant!! Girlie has Oglioarticular Juvenile Idiopathic Arthritis. Although this will probably change as she has more joints affected. 4 or under is Oglioarticular, 5 or more is Polyarticular. We are on joint 5 as her elbow has flared in the last couple of days.

She has been referred to an opthamologist as her eyes will need testing regularly as it can affect the fluid in the eyes (uveitis).

We actually see Consultant on 19th March at Rheumatology Clinic, and will have a greater idea of where we are going with the diagnosis and what we can do to help her manage it.

We are getting new NSAIDs to try and combat the swelling as general Ibuprofen is not reducing it enough and longer the joints are swollen, the more risk of permanant damage. So hopefully the Naproxen is going to help, if not we have to keep going until we find something that does.

So I guess for now, we just have to carry on as we are and see what happens. I am not very good at this whole waiting thing, which is why I get so frustrated having to wait for everything.

Bloods on Friday morning to see what her ESR, and ANA looks like. More chasing the hospital next week for blood results then...


Oh the Joys!!!

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